Some of the 345,000 Californians with Fetal Alcohol Spectrum DisorderThe California FASD Task Force Chaired by Shirley
Dove, Past President of The Arc of California
February 8, 2008 AgendaLatest Grant Proposal Attention:
The Fetal Alcohol Spectrum Disorders: Curriculum for Addiction Professionals: Level 2 (CAP 2), is the product of a joint effort of the SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence and the National Organization on Fetal Alcohol Syndrome (NOFAS). This curriculum aims to help addictions-focused professionals prevent, recognize, and address FASD. It provides training for social workers, certified addiction counselors, psychologists, psychiatrists, and others in the treatment and recovery field. This curriculum has been designed for professionals who work with men, women, and adolescents in treatment, though some of the competencies (e.g., Prevention) focus on issues specific to women.
CAP 2 is currently available to order from NCADI. To order, access the following link at http://ncadistore.samhsa.gov/catalog/productDetails.aspx?ProductID=17776. posted by Amber Kesterson
Mission Statement (As of August 16, 2005)The mission of the California FASD
Task Force is to advance the effective prevention and treatment of fetal
alcohol spectrum disorders (FASD). The task force is an
independent, public-private partnership of parents and professionals
from many disciplines committed to improving the lives of Californians
affected by FASD and eliminating alcohol use during pregnancy. Through
innovation, education, advocacy and research, the task force provides
leadership in mobilizing broad-based support and sustainable resources
statewide to lessen the lifelong physical, psychological, emotional and
economic burden of this preventable public health problem on
individuals, families and communities.Current Documents
Strategic Plan (Draft)
(posted December 12, 2005)
Consultant Notes: This document is final pending the addition
of the affiliations of Jan and Sue (Goal 4), an addition of a
champion for Goal 6, and confirmation that all listed champions are
willing and able to serve in that capacity.,
Strategic Plan Summary & SWOT Analysis
(posted December 12, 2005)
Consultant Notes: This is the material I agreed to draft for the
strategic planning document in addition to the strategic plan and
action plan, updated from the 10.29.05 version to include the
11.01.05 meeting. Once you/your designate have compiled the various
components of the document from the authors, I strongly recommend
careful editing for accuracy, completeness, good flow, consistency
and lack of duplication. Most of all, before dissemination, review
the document for impact—it might be worthwhile to pretest it with
and get feedback from a stakeholder who has not been involved in the
strategic planning process. In addition to serving as a guide for
the task force, your strategic planning document can be a useful
marketing tool for partnership and resource development. In
presentation and content, it should make a statement!
Action Plan(posted December 12, 2005)
Consultant Notes: This is a rough draft based on the recommendations
of the November 1 workgroups. It needs a few refinements before it
is ready for stakeholder review and comment:
There were no activities listed on the worksheet for goal 1,
though the workgroup did identify many activity partners.
The spelling of all names should be checked as I had difficulty
reading handwriting on some worksheets.
Proposed activity leads should be asked whether they are willing
and able to serve in that capacity.
The recommended next step is to circulate the revision to all
stakeholders for review and comment, or to post the revision on
the website and e-mail all stakeholders, directing them to the
website and inviting them to review and comment.
Kathy Page, Ph.D. (Financial
Impact Information) return to
The study on the various cost estimates
for FASD. The conservative figure winds up at $2 million per person,
and leaves out a lot of what we know should also be included--if I'm
reading it right, the following are NOT included in the cost estimate:
Medical services for physical anomalies, such as visual problems,
kidney and genital tract problems, dental and skeletal defects,
anesthesiology services, and some physician costs during the first
year of hospitalization.
Welfare payments to the family.
Mental health services.
Criminal justice (e.g., trial and incarceration, which can cost
about $20,000 per year).
Services for mild physical problems and learning disabilities.
productivity of caregivers and persons with FASD.
Cynthia Jaynes (Including Alcohol Related
Questions Other State Surveys)
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Here are the FASD awareness questions we
(CA Alcohol and Drug Programs) are proposing to include on the Dept. of
Health Services' California Women's Health Survey. These questions are
placed in proximity to questions related to pregnancy, not alcohol
How often is it okay for a woman to
drink (alcohol) during pregnancy? Open-ended responses, interviewer
Is it ever too late to quit drinking
or cut down during pregnancy even if it's later in pregnancy? Yes,
No, don't know, refused
These are not the final versions of the
questions and we can add one other. Any suggestions or guidance from
the FASD Task Force is welcomed.
Tony Anderson (Information
on Secondary Effects of FASD)
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The following is a preview and order form
to purchase the book, The Challenge of Fetal Alcohol Syndrome,
Overcoming Secondary Disabilities, Edited by Streissguth and Jonathan
Kanter of the Department of Psychiatry and Behavioral Sciences
University of Washington School of Medicine. This was the
resource we talked about during our last meeting related to Secondary
Effects. However, this is only available for purchase. “In
the first book of its kind, experts describe how to help people with
Fetal Alcohol Syndrome. A summary of recent findings and recommendations
is presented by the team who conducted the largest study ever done on
people of all ages with Fetal Alcohol Syndrome and Fetal Alcohol
Effects. Twenty-two experts, conference presenters from the fields of
human services, education, and criminal justice, respond by describing
their solutions to this problem of a birth defect that targets the brain
and has lifelong consequences. This book acknowledges the diverse and
multifaceted needs of people with FAS/FAE across the lifespan. It will
be valuable for parents and the many professionals working with people
with FAS/FAE." Kathy
Page, Ph.D. return to top
This is the article by Ira Chasnoff that
takes thousands of women throughout CA and concludes that 30% drink
until they discover their pregnancy, and half of those continue to drink
during the rest of the pregnancy. The article was published in the
Journal of Perinatology 2005; Vol. 25; pp. 368-374. The title is
Plus (c) Screen for Substance Use in Pregnancy: Clinical Application
Sharon Dorfman (Current
Screening of Youth in the Juvenile Court System)
return to topNorthrop Grumman
Health Solutions has awarded subcontracts to five juvenile courts to
assess at intake whether a juvenile should be referred for FASD
diagnostic evaluation. In these juvenile court systems, a variety of
staff use a range of screening tools designed to capture information on
cognition, health status, mental health, substance abuse, services
received and other relevant details. Detailed information about current
screening tools these juvenile court systems routinely use, access to
records on youth or any aspect of the juvenile court initiative is
available from Catherine Hargrove at Northrop Grumman Health Solutions
Dr. Ed Riley (Prevalence Data) return to top
Attached is an article on the rates of
alcohol and drug positive urines at the time of delivery. Positive
alcohols show up in about 7% of the deliveries and it must be remembered
that this is very conservative since you would have had to consumed
alcohol fairly recently prior to showing up for delivery for alcohol to
still be detected in urine.
Finch Alcohol and Delivery, here is a link to similar data as well.
Tony Anderson (National
Task Force Recommendations)
return to topIn
1999, Congress directed the Secretary of the U.S. Department of Health
and Human Services to convene the National Task Force on FAS and FAE
(the Task Force). Following are fifteen recommendations made by the Task
Force, in their report Defining the National Agenda for Fetal Alcohol
Syndrome and Other Prenatal Alcohol-Related Effects. Task Force
recommendations are as follows:
Develop a clinical case definition for diagnosing FAS,
including a neurocognitive phenotype, and begin work on establishing
a clinical case definition for ARND.
Develop a uniform surveillance case definition for
FAS and begin formative work on a uniform surveillance case
definition for ARND.
Develop a white paper to review and summarize
relevant epidemiologic research addressing the scope of the problem,
prevalence, risk factors, impediments to diagnosis, and number of
women at risk for an alcohol-exposed pregnancy.
Develop a white paper to review the evidence for
effective prevention and treatment strategies for women at risk for
or engaging in prenatal alcohol use. The report should describe
women at risk, identify barriers to implementing effective
strategies, and proscribe against implementation of untested models
or models that are not evidence-based.
Develop a health services research agenda focusing
on families of persons with FAS and ARND that address such concerns
as why certain families do well and stay together, the impact of FAS
and ARND on families relative to other birth defects, and how the
legal system deals with FAS and ARND.
Develop a science research agenda, including
translational research that brings basic research findings to the
clinical domain (e.g., neuroimaging), and address concerns of
maternal and fetal susceptibility to FAS and ARND.
Complete a profile of state, tribal, and private
entities with existing services for persons with FAS and ARND and
women at risk for an alcohol-exposed pregnancy; the profile should
include eligibility criteria and ongoing educational efforts for
professionals regarding FAS and ARND.
Develop an agenda that will lead to a national
standard of care for persons with FAS and ARND during their life
span, including best practices and plans for dissemination of
standards to relevant health-care professionals.
Endorse a national coordinated media campaign and
request that ICCFAS recommend how to coordinate this effort among
all federal agencies.
Endorse the U.S. Surgeon General's Advisory
statement regarding drinking during pregnancy, and urge that the
statement be reissued as part of the coordinated national media
Contact the Office of National Drug Control Policy
to recommend inclusion of information regarding FAS and ARND in
their resource materials.
Develop a checklist of essential state services
needed to prevent FAS and ARND, to treat persons with FAS and ARND
and their families, and to better identify women at risk for having
an alcohol-exposed pregnancy.
Develop and disseminate a plan for systemwide
education regarding prenatal alcohol-related disabilities to be
offered to professionals in health services, judicial services,
education, child welfare, vocational rehabilitation, juvenile
justice, maternal child health clinics, and disabilities services
Develop and disseminate a kindergarten--grade 12
curriculum to address FAS, ARND, and prenatal alcohol use.
Investigate incorporating information related to
prevention and treatment of FAS and ARND into the credentialing
requirements for teachers, juvenile justice workers, lawmakers, and
health-care professionals (e.g., include FAS-related questions on
state board exams).